My first time at the beach! . . . . . . #dogs #dogsofinstagram #dog #dogstagram #puppy #doglover #dogoftheday #instadog #doglovers #doglife #pets #puppylove #puppies #puppiesofinstagram #dogsofinsta #petsofinstagram #dogslife #animals #ilovemydog #doglove #petstagram #dogphotography #cutedogs #poochon #bichpoo #poodle #bichon #toypoodle #cavapoo #goldendoodle
Today is rare disease day. Over the last 4 years I have been helping to raise awareness about CCHS. An extremely rare disease that means that those affected can not breathe unaided once they are asleep. @cchsnetwork is the charity ran by our best friend Adam who literally grew this foundation alone with other parents for his son @teddyjoefox to raise money to fight this, fund research and pay for medical bills which they receive NO government help with. As with all rare diseases the funding is overlooked and they lead this fight alone. This year I was introduced to @keepmebreathinginsta an English family who are doing the same work for their son Casper in the uk! They have made tremendous developments! Next month doctors from France and the US will be flying to London to discuss their plans for a pacemaker meaning that EVERY child who has CCHS will hopefully one day be able to live and breathe freely from a machine. This is huge because it will be available to every mutation of the gene unlike medications which are usually specific to a certain type of CCHS. I feel it’s important to point out that this alone won’t free every symptom of CCHS but it will allow independence which is all any parent wants for their child. I feel so grateful to be able to share this news with you and hopefully we can all be a part of changing peoples lives!!! A miracle if this happens and we keep raising money and awareness!!
This Giving Tuesday, we're highlighting an incredibly important cause to us, the @cchsnetwork . Blair’s son @teddyjoefox was born with the incredibly rare condition that affects less than 1500 people in the world. Today we'll be donating all of the proceeds from the F&B Stone Hearts to The CCHS network. Please join us in supporting the CCHS, a small but mighty organization with any donation, share, or just by reading about the incredibly rare condition. With love and gratitude, The Fox and Bond Families ♥️
Happy Giving Tuesday!! We are so beyond grateful for all of the incredible donations to support the @cchsnetwork and their quest to find a cure for Teddy and all those afflicted with CCHS. With over 400 donations from all around the world, we are so close to hitting our goal of $25000. Any amount helps! ❤️❤️❤️ #cchsawareness
